Sarah* during the interview.
Today is World Mental Health Day, and FAME joins the rest of the world in raising awareness of mental illness and mobilizing efforts to support access to mental health services.
In northern Tanzania, where we work, the stigmatization and marginalization of people with mental illness are still rampant. Access to mental health services is restricted, resulting from limited healthcare facilities treating mental health, lack of mental health caregivers and lack of funding for tackling these illnesses.
Even though FAME is not a psychiatric hospital, we still get patients with various mental illnesses. For example, this week, we met Sarah* and her daughter Caroline* at FAME’s outpatient clinic. Caroline has brought her 66-year-old mother to FAME because she suffers from high blood pressure. Her mother has also not been herself for a couple of weeks. Sometimes she becomes harsh and lashes out at her little grandchildren, unlike her. Other times, she sits in a corner alone and talks to herself; other times, she just bursts into tears out of the blue.
“This is a secret my siblings and I keep. My mother is a somewhat unofficial local leader, considered a big honor, but she would lose this social standing if people found out she talks to herself. If our extended family or neighbors hear that she might not be all there in the head, she will be ostracized. I’m glad that we can say that we came here because she has high blood pressure, so people won’t know we are also dealing with another illness.”
Cases like Sarah’s are familiar. Dr. Michael Rubenstein has volunteered at FAME since 2013, bringing residents and fellows from the University of Pennsylvania and Children’s Hospital of Philadelphia. He runs the neurology clinic, which conducts neurological clinics at FAME and outreach to FAME’s catchment area dispensaries. This is his reflection, in his own words:
Dr. Rubenstein on Neuro outreach.
From my first visit to FAME in 2010, it became clear that mental health care in Africa was in need. As I began seeing patients with psychiatric rather than neurologic illnesses, I was told:
“You’re the closest thing to a psychiatrist that we have in Northern Tanzania.”
In an article published in The Lancet Global Health in 2018, it was noted that of the 637 articles published in their journal in the last five years dealing with the world’s most economically disadvantaged region, Africa, only 39 articles had explicitly referred to the psychiatric aspects of the disease, and none to schizophrenia. A 2014 WHO mental health survey reported that only 46% of African countries had implemented standalone mental health policies and further noted that the number of Africans receiving treatment for mental health issues was exceedingly low – with a global annual rate for visits being 1051 per 100,000; in Africa, the rate was only 14 per 100,000. The treatment gap for mental health care in many African countries approaches 100%.
Over the last twelve years of treating patients here at FAME, our neurology group has evaluated and treated countless patients with primary psychiatric illnesses such as depression, schizophrenia, anxiety and bipolar disease. In all these cases, our assessments have been thorough. Our treatment recommendations, most often consisting of medications indicated for these conditions, have provided relief from their symptoms, and patients have returned to see us on subsequent visits. Both patients and families have benefitted from our care. However, it should be noted that we are neurologists, not psychiatrists, and we provide this care without adequate mental health services or healthcare workers.
Though our impact can be significant, it should not serve as a formal substitute as it detracts from our mission to improve neurologic care within Tanzania. I do recall one particular patient, who I had first seen several years ago with the complaint that he was having difficulty focusing and sleeping and, over the last year, his wife had left him, and he had lost his children. He was a college graduate with a good job and was distraught over his plight. He had bipolar disorder for many years and improved dramatically after placing him on the appropriate medication regimen. He has continued to follow up with us every six months and remains fully functional and improved. Though his case was a success story, I am certain countless other patients in need of similar care are not as lucky to make it to our clinic for treatment and continue to suffer in silence.
-By Dr. Michael Rubenstein.
FAME recognizes that the mental health and well-being of many health, social care and frontline workers have been affected by the COVID-19 pandemic, and our medical staff is no different. Work stress is also a possible trigger of psychological problems.
The FAME wellness club and the football team have been a great source of stress relief for employees and help reduce anxiety. FAME has strengthened our systems of communication, empathy and assertiveness to better support its staff not only during times of crisis but also during day-to-day operations. All this ensures that FAME has a healthy and engaged workforce.
FAME’s Director of Operations, William Mhapa, leads the FAME football team in a tournament
*While the patients’ names have been changed to protect privacy, permission was secured to share her photos and story with FAME supporters and to raise awareness of available medical care at FAME Medical.